Normal Life

16 Jul

Playing just like they should be

For the first time in a year we have had an un-eventful few weeks! It is all down to the miracle insulin pump that Jac now has. He is now acting like a normal 3-year-old, with lots of tantrums, being happy and cheeky and funny and HEALTHY! His reasonably normal blood sugar levels mean that he is feeling normal 90% of the time although we do have the odd glitch with a high or low-level which could be due to a bad carbohydrate estimation on our behalf, or a funny time of day, or the wind blowing in the wrong direction! You get my drift.

This week I have been panicking about september. Now, I know that every parent worries about their child starting school, but multiply that worry by approximately a million percent and that’s where I am now! Jac will be starting pre school which is 2 hours every morning. We have met with the school and they seem quite eager to learn how to look after him, but Type 1 is not something in which they have experience so it will be a learning curve. This is fine, as I will be staying with Jac for the first week or so until they gain confidence with caring for him, and learning how to check blood glucose levels and how to watch for signs of a low-level. But my inner self is crying with fear about my baby being in someone elses care for 2 whole hours!!! Will they know that if he cries he may be low? If he is grumpy will they realise he is probably high? Or will they put it down to awkwardness and not test his glucose levels? My stomach is in knots about this next stage of letting go.

We have applied for funding for one to one care for Jac. This may not take effect in september as he is still not full-time and not the legal age for a child to be attending education. I am in the process of applying for the funding so that once he is full-time he gets the extra care he deserves. I don’t mean that the school wont take care of him, but I do mean that with a class full of children it may be hard to spot warning signs of Jac going dangerously low. It would mean at lunchtime that I wouldn’t come into school to give insulin, which I would never mind, but as he gets older he might not want his mum interrupting his school day! Also, if he gets the funding then the class get an extra pair of hands around to help out! I do think that Jac does have extra needs and until he is old enough to understand and deal with them then he deserves to be looked after and watched out for. Its funny, prior to Jac being diagnosed I would rather have hidden in a corner than spoken out about any issues I had. But since his diagnosis I am a Lioness. Strong, proud of my Sons and willing to fight for anything we need for Jac to have the education he deserves.

On another note, I hate talking about the weather, but bloody hell! I need some Vitamin D and sunshine! Enough torrential rain! Its bloody mid July! At least it’s not just Wales suffering this time, all of the UK is miserable. Come on summer, show your face…….!

 

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5 Responses to “Normal Life”

  1. Claire corcoran July 23, 2012 at 8:06 pm #

    Hi! Our daughter Molly was diagnosed t1 two months ago,so you know which part of the journey important on at the moment. HHrartbrpken does not. Come close. Thankyou for taking the time to write your blog~it’s. nice to think we Will come out the other side. I will speak tp you soon in the meantime i hope. your little one. continues. the way the last. couple. of weeks. have. Take care x

    • type1welshboy July 23, 2012 at 9:00 pm #

      Hi Claire,
      I’m so sorry to hear about Molly going through this journey, and you have all my thoughts. It was Jac and I last year and if you read my other posts you will see how I struggled with feeling a bit down for a few months. I think it is a normal reaction. How old is Molly? How is she coping with everything? You are welcome to stay in touch and I hope I can help if you need it. I’m on twitter my username is @emmawales
      Thinking of you and Molly…….
      Emma

  2. Claire corcoran July 23, 2012 at 8:09 pm #

    Hi! Our daughter Molly was diagnosed two months ago,so you know which part of the journey. we are on at the moment. Heartbroken does not. Come close. Thankyou for taking the time to write your blog~it’s. nice to think we Will come out the other side. I will speak tp you soon in the meantime i hope. your little one. continues. the way the last couple. of weeks. have. Take care x

  3. Carly Wheeler August 2, 2012 at 7:23 pm #

    Hi Emma, I have just found your blog via the Diabetes forum. My little boy, Finn, was diagnosed T1 in April this year and we are still finding most days a challenge. I am so grateful that he is essentially the same crazy, intelligent and funny little boy, but the daily (and nightly!) management of his diabetes does take it’s toll on all of us. I could have written every entry so far, as our lives mirror your experiences in so many ways. Finn isn’t pumping yet, but we hope that will be an option for him in the near future. However, he is starting school in September and has continued to attend his nursery and holiday club post-diagnosis. So far, the adults charged with his care have been fantastic and the school have experience with Type 1. However, giving over the control and care of your vulnerable child to someone else (even for a few hours) is really hard. I look forward to reading more of your blog soon. Take care x

    • type1welshboy August 3, 2012 at 11:23 am #

      Hi Carly, so sorry to hear about Finn but glad you are coping well with it all! I know what you mean about the night testing, I do the majority of it in our house and I’m sure I must look about 10 years older by now with the bags under my eyes! Please feel free to stay in touch, I’m sure we will have useful stories to swap!
      I’m part way into writing the next installment so more blogging to come soon hopefully.
      Emma

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