Release From Hospital!

18 Jun

After being inmates, whoops I mean inpatients, for a week it was decided that we were ready to face the world with all that diabetes would throw at us. We left armed with insulin, insulin pens, spare insulin, spare insulin pens, blood meter, spare blood meter, finger pricking devices, spare finger pricker device, you get the picture! Basically half of the pharmacy. I felt very scared and nervous leaving hospital, as we were going from a nice little protected bubble surrounded by doctors and nurses to the big wide world! I had all this medical equipment, had injected Jac 2 times and had now graduated to his stand in pancreas with the mammoth job of keeping him alive by injecting him with insulin. I felt a little inadequate to say the least. Overwhelmed probably is a good description.

As we drove out of the hospital car park, with a carton of orange juice on the seat next to me (in case of a hypo on the way home) and Jacs diabetic specialist nurses mobile number ready on speed dial, Jac piped up from the back seat “Mummy! We are going home! I’m all better now and no more leg medicine (his term for the injections)” My heart broke for at least the second time that crazy week.

I’ve brushed over the injection part of Jacs diabetes. But, believe me, it certainly was not nice. On the one hand I was so grateful for this miracle drug, which a few decades ago would not have even existed. On the other hand it is not easy to explain to a 2-year-old that we are giving him injections to keep him alive. He screamed, he ran away from me, he would sob in the corner shouting “No Mummy, no!” I would have to just steel myself, be very matter of fact and do it quickly and give him lots of cuddles after as well as a funky sticker chart where he got to pick a sticker after each injection. Funnily enough the blood checking did not bother him so much. For anyone who is not sure, to check glucose levels you have to prick the finger with a lancet to get a drop of blood which then goes onto a clever little machine which then gives a blood level. Generally Jacs levels would range from 2-25mmols, a non diabetic person is between 4-8mmols. His tiny little fingers with baby soft skin soon became very hard on the edges from all the lancet pricking.

So, our first day home involved pricking his finger every hour or so, and injecting him after he ate. If he was high, I was clueless as I had not yet figured out how to adjust insulin to carbohydrate (it was my first day home I had a lot to learn!) and if he was low I knew I had to give fast acting glucose. Also started the alarm settings for the night. Every 2 hours. I was so very tired, but also so happy that we had these tools to help Jac survive. Yes, it was a heck of a shock going through his diagnosis, but, we were lucky enough to live in 2011 when all these medicines could help him survive. I also knew we were very lucky to still have him. I was very determined that over the time I would do everything I could to keep positive and not let this change who he was. I also set on a massive learning curve and became a little addicted to finding out everything I could about type 1 diabetes…….

Till next time!

Emma

 

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One Response to “Release From Hospital!”

  1. Leonard Marks July 4, 2012 at 6:36 am #

    great post

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